Patient’s experiences of being discharged home from hospital following a diagnosis of malignant spinal cord compression

Abstract

Purpose

The purpose of this study is to explore experiences in the days and weeks following discharge home following diagnosis and treatment for metastatic spinal cord compression (MSCC).

Methods

Eleven participants took part in audio-recorded semi-structured interviews about their experiences at 1 and 3–4 weeks post-discharge home following a diagnosis of MSCC. Transcripts were analysed using a framework approach.

Results

Time emerged as an overarching theme within the framework of four time points: past, present, near future and distant future. Themes included getting home, challenges at home, community support, getting back to normal, in limbo, long-term goals and coping strategies.

Conclusion

Getting to a level of coping at home after discharge following MSCC can take time. Services need to address this so that patients can live well within the limitations they face.

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